Milestone Achievements

  • Albinism awareness to Federal Republic of Nigeria and other nations.
  • Published a document with the support of UNICEF on the attitude, knowledge and practices of children with albinism Education in Nigeria.
  • Free medical Treatment to over 3,000 PWAs patients with skin cancer.
  • 90 Children benefited from UNICEF scholarship grant for 2011 – 2012.
  • 60 pupils benefited from Institute of Human Virology of Nigeria (IHVN) Education grant for 2014-2015
  • 151 pupils presently on Total Staff cooperative society education grant
  • 40 Parents/caregivers economically empowered with free grants to adequately cater for their children
  • Produced Albinism Core Messages and frequently asked questions on albinism
  • One PWA MSC post graduate from university of Scotland UK.
  • First National Policy and implementation guidelines on Albinism globally.
  • Extra time for PWAs in all levels of examination in Nigeria
  • Development and mainstreaming of Albinism education curriculum in Nigeria schools.
  • National Albinism Day (5th May annually)
  • Championing inclusive education and curriculum development in Nigeria
  • Currently pursuing three outstanding bills (National Agency for Albinism and hypopigmentation; Albinism policy implementation Act and Inclusive Education bill) before the National Assembly

Active role at various levels of UN action on albinism and chair of IBA albinism task force

SYNOPSIS OF MILESTONE ACHIEVEMENTS OF EU-SDGN PROJECT MANAGED BY THE ALBINO FOUNDATION

  • The following are the documented synopsis of milestone achievements of EU-SDGN project manage by the Foundation:

    1. The foundation is currently leading other Organizations of Persons with Disabilities and disability community in the process that will ensure issues of Persons with disabilities is captured in the ongoing public hearing on “The Proposed Alteration to the Provisions of the Constitution of the Federal Republic of Nigeria, 1999” by jointly drafted a memorandum and presented it during the public hearing in all 6 (six) geo-political zones where the public hearing was held.

     

    1. The Foundation in partnership with the office Deputy Senate President, INEC, European Center of Electoral Support, Centre for Citizens with Disabilities and CLEEN foundation with support from European Union facilitated the process that led to the development of a position paper on the amendment of the relevant clauses in the Electoral Act that promotes the inclusion of persons with disabilities and other vulnerable groups in the ongoing Electoral Amendment Bill and submitted it to the Senate and House of Representatives’ Joint-Committee on INEC and Electoral Matters for further legislative action.

     

    1. The foundation in partnership INEC produced a Disability Inclusion Guide which was later reviewed and validated by all relevant stakeholders such as such as the Inter Party Advocacy Council (IPAC) which is the governing body of all political parties, INEC, Civil Society and Disabled Persons Organizations, PWD contestants and politicians for use by Electoral stakeholders: This document further provided a guide to other stakeholders in mainstreaming persons with disabilities in their processes.

     

    1. The Foundation has carried out baseline survey of eligible voters with disabilities in Osun state, Ekiti state and FCT which guided INEC and EKSIEC in the deployment of assistive voting materials during the 2018 governorship election in Ekiti and Osun state, 2019 general elections in Osun and Ekiti states, FCT (Abuja) and during 2019 Local Government election in Ekiti State. As a result of this positive development, the Foundation has been given a mandate by Independent National Electoral Commission to carry out baseline survey of eligible voters with disabilities in additional 12 states of the federation.

     

    1. The foundation has built the capacity and increased the knowledge of Persons with disabilities on electoral and political guidelines which has enabled them to better understand the political sphere and increase number of Persons with disabilities vying for political and elective positions in order to occupy the political space within their parties.

     

    1. The Foundation has built the capacity of relevant stakeholders such as, INEC, SIEC, Political parties, key officers of judiciary, lawyers, law enforcement agencies etc. on the understanding of disability and how to ensure that Persons with disabilities are mainstreamed into the political and electoral processes in the project states.
    2. The foundation has engaged and trained political parties to conduct meaningful outreach to persons with disabilities as well creating inclusive election campaign strategies and developing policy positions, and encouraged parties to include persons with disabilities as candidates and in leadership roles while IPAC, the umbrella body of political parties has reviewed its code of conduct to include persons with disabilities amongst vulnerable groups requiring priority.

     

    1. The foundation has built that capacity of SIEC and INEC on how to address different clusters of disabilities at the polling booths; ensure that voting materials are accessible to different clusters of disabilities, what materials to provide to capture different clusters of disabilities, how to ensure that polling booths are accessible to different clusters of disabilities, human rights based approach to elections and the need to ensure that Persons with disabilities are part of INEC, SIEC ad hoc staff to be engaged during voter registration and elections.

     

    1. The Foundation has carried out numerous advocacies and media sensitization programs that promote political participation and inclusion of persons with disabilities in the political and electoral process as well as other spheres of human endeavors.

     

     

    1. The media sensitization program titled “Disability Inclusion” which focused on the inclusion and mainstreaming of Persons with Disabilities in political, electoral and all spheres of human endeavors. The program aired weekly on Thursday, Friday and Saturday on Ayoba 95.1FM (Ekiti state), OSBC 104.5 FM (Osun state) and live on all FRCN radio stations nationwide. The program has built the capacity of relevant stakeholders such as INEC, SIEC, Political parties, Media, Religious leaders and members of the public etc. on the understanding of disability issues and inclusive society for all. It has also sensitized and built the capacity of Persons with Disabilities to know their rights and demand for it while the program has also created more awareness on disability inclusion in Nigeria.
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