REPORT OF THE STAKEHOLDERS’ REPORT VALDATION MEETING ON A BASELINE SURVEY OF PERSONS WITH ALBINISM IN OYO AND PLATEAU STATES

SUMMARY OF THE REPORT OF THE STAKEHOLDERS’ REPORT VALDATION MEETING ON A BASELINE SURVEY OF PERSONS WITH ALBINISM IN OYO AND PLATEAU STATES HELD ON THE 29TH OF JULY, 2019 AT THE LAPS NEW WORLD HOTEL, JABI-ABUJA

Resulting from the lack of documented information on persons with albinism in the country, The Albino Foundation partnering with the Australian Embassy carried out a baseline survey of persons with albinism (PWAs) in Oyo and Plateau states. The aim of the Baseline survey was to enable proper documentation of PWA and the needs and challenges they face. However, the need to critique the report led to the Stakeholders’ Report Validation meeting in order to present credible result to the public.
The Validation meeting began with an introduction by Mr. Damian Ivom, the Project Manager of the Albino Foundation. He welcomed and thanked all participants and stated the aim of the meeting, after which an opening prayer was said by Miss Ruth Madujemo.

Mr. Jake Epelle, the founder of the Albino Foundation gave a brief opening remark. He stated the aim and objective of the meeting, and the need to have accurate and comprehensive data of PWAs. He commended the method used in the survey, which he said is globally recognized.
Mr. Damian Ivom again explained the need for the survey, which he said was aimed at creating knowledge of the challenges PWAs and their parents face on a daily basis, so as to plan accurate intervention for them. He said that the initial survey carried out in six (6) states exposed more presence of PWAS in Kogi than in any other states, hence the survey in Oyo and plateau states respectively.

Mr. Roland Arabome, the consultant of the report who works with PRL Research Centre, presented the survey report to participants for review and intelligent critique. He presented the aim of the survey and stated that the survey was able to address its aim; one of which is to enhance mainstreaming of persons with albinism into the socio-economic and political segment of the country. He further stated the research method used in the survey and explained that the percentage of men with albinism was higher than their female counterparts. He explained that the report revealed the negative effects and consequence of discrimination on PWAs.
Mr. Roland Arabome, in his final statement, stated that the report was conducted in an international and polite manner, and that the use of vernacular was employed for respondents who couldn’t understand English language.

At the end of the report presentation, questions were asked and suggestions were made by the participants. All the questions raised were adequately treated and the suggestions were noted and debated upon.
One of the field workers by name Abel Mwendaga shared his experience on the field. Thereafter, Mr Damian Ivom gave a vote of thanks bringing the meeting to a close at 12:30 pm.

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